EPA Science Inventory

FINAL REPORT: NATIONAL CHILDREN'S STUDY FOCUS GROUPS - FOLLOW-UP

Citation:

LOBDELL, D. T. AND L. DIMITROPOULOS. FINAL REPORT: NATIONAL CHILDREN'S STUDY FOCUS GROUPS - FOLLOW-UP. U.S. Environmental Protection Agency, Washington, DC, EPA/600/R-05/020, 2005.

Description:

The purpose of this work assignment was to add to our knowledge of the issues that will affect

recruitment and retention of pregnant women into the National Children's Study by conducting 14 focus

groups comprised of pregnant women, couples, and parents of young children who represent a range of

racial and ethnic minority groups. Eight of the groups conducted were comprised of women recruited

from eight different racial and ethnic groups. Four of the groups were devoted to issues affecting

pregnant teens, and couples trying to conceive, and two groups focused only on the collection of biologic

specimens. The information collected from this set of focus groups expands on the information gathered

from an earlier series of 18 focus groups conducted with five major stakeholders in the NCS' pregnant

women, parents of young children, parents of children with disabilities, community representatives and

health care providers.

Based on information learned in the early groups and on an extensive literature on mistrust of

researchers among racial and ethnic minorities, we wanted to explore further the ways that beliefs about

mistrust of research, particularly medical research, and institutional racism may impact recruitment and

retention of racial and ethnic minorities into the NCS. Another area of concern involves the special issues

and circumstances that are specific to pregnant teens. It will be important to know what this group thinks

about committing to participate in the NCS. Since the NCS plans to enroll women into the study as early

in pregnancy as possible, a third important group included couples who are trying to conceive. Would

this group have unique concerns about enrolling in the NCS? Finally, we were interested in learning

more about how women think and feel about the collection of biologic specimens both during pregnancy,

delivery and from the child after birth. This topic was covered in the previous 18 focus groups but only

as one topic among many. In this set of focus groups, the collection of specimens was the main topic of

discussion that allowed us to explore the topic in depth.

This report describes the findings from fourteen focus groups that were comprised as follows:

" Pregnant teens and teen mothers (2 groups)

" Couples currently attempting to become pregnant (2 groups)

" Pregnant women and parents discussing biologic specimen (2 groups)

" Pregnant women and mothers of varied racial and ethnic backgrounds (8 groups)

African-American, (non-Hispanic)

Non-African-American Black (non-Hispanic)

Mexican-American

Hispanic (non-Mexican-American)

Native American Pacific Northwest

Native American Southwest

Chinese-Thai-Vietnamese Asian

Filipino-South Asian Indian-Indonesian

This report also provides an overall summary of the major themes that emerged from both the

earlier set of 18 focus groups and the 14 focus groups conducted in this follow-up.

Purpose/Objective:

To add to our knowledge of the issues affecting recruitment and retention of pregnant women into the National Children's Study by conducting 14 focus group sessions.

URLs/Downloads:

Record Details:

Record Type: DOCUMENT (PUBLISHED REPORT/REPORT)
Start Date: 03/05/2005
Completion Date: 12/31/2005
Record Last Revised: 07/12/2008
Record Created: 01/27/2005
Record Released: 01/27/2005
OMB Category: Other
Record ID: 114981

Organization:

U.S. ENVIRONMENTAL PROTECTION AGENCY

OFFICE OF RESEARCH AND DEVELOPMENT

NATIONAL HEALTH AND ENVIRONMENTAL EFFECTS RESEARCH LAB

HUMAN STUDIES DIVISION

EPIDEMIOLOGY AND BIOMARKERS BRANCH