EPA Science Inventory

INTERIM REPORT, DEVELOP A COMMUNITY INVOLVEMENT STRATEGY: PREPARE TO IMPLEMENT A COHORT STUDY OF CHILDREN'S ENVIRONMENTAL HEALTH

Citation:

MENDOLA, P. AND S. MYERS. INTERIM REPORT, DEVELOP A COMMUNITY INVOLVEMENT STRATEGY: PREPARE TO IMPLEMENT A COHORT STUDY OF CHILDREN'S ENVIRONMENTAL HEALTH. U.S. Environmental Protection Agency, Washington, DC, EPA/600/R-05/014, 2005.

Description:

Introduction

The National Children's Study (NCS) is an ambitious undertaking: a 20-year prospective cohort

study that will investigate the relationships between a broad range of environmental factors and the health

and well-being of children. Approximately 100,000 U.S. children will be followed from prenatal

development through to adulthood. There are many factors that will help ensure a successful study, and

key among them is the ability to recruit and retain participants for a long term follow-up. For the past

four years, NCS planners have been examining the question of community involvement in light of

approaches that would promote buy-in from the community and help to ensure high recruitment and

retention rates among study participants. Issues surrounding the development of an effective community

involvement approach include:

" defining the 'community'

" identifying key community stakeholders and their roles

" community empowerment

" building on existing relationships with community-based organizations

" developing a consistent overall message about the study

" developing a community profile that can be used to tailor messages to specific groups and

subgroups

" information dissemination among the community

The North Carolina Cohort Study (NC Cohort Study) will provide an opportunity to examine, and

perhaps field test, the various methods by which communities can participate in and promote a study such

as the NCS. This report has been prepared in response to Task 3 of the work assignment, Prepare to

Implement a Cohort Study of Childrens Environmental Health. The purpose of this task is to begin to

create a community involvement strategy for the NC Cohort Study. While many of the details (e.g.,

selection of primary sampling units, length of follow-up) remain to be determined, this report will lay the

groundwork from which community-specific strategies can be developed.

Because the success of the study will depend on the extent to which communities participate in

the research, we begin by presenting the general principles of community-based research (CBR) to

provide a framework for designing effective strategies. We proceed with a description of specific steps in

garnering community involvement, and provide examples of different approaches to these steps. Various

approaches are suggested, depending on the level and extent of community involvement desired. The

community involvement strategy for an observational study will require a somewhat different approach

than that typically undertaken for research that incorporates community-based intervention activities; our

discussion will incorporate this perspective.

Purpose/Objective:

To investigate our ability to recruit and retain participants for a long term follow-up study of children's environmental health.

URLs/Downloads:

Record Details:

Record Type: DOCUMENT (PUBLISHED REPORT/REPORT)
Start Date: 03/05/2005
Completion Date: 12/31/2005
Record Last Revised: 07/11/2008
Record Created: 01/27/2005
Record Released: 01/27/2005
OMB Category: Other
Record ID: 114975

Organization:

U.S. ENVIRONMENTAL PROTECTION AGENCY

OFFICE OF RESEARCH AND DEVELOPMENT

NATIONAL HEALTH AND ENVIRONMENTAL EFFECTS RESEARCH LAB

HUMAN STUDIES DIVISION

EPIDEMIOLOGY AND BIOMARKERS BRANCH